Tuesday, June 21, 2011

Here We Go!

I have spent the day packing for our trip to Coeur D'Alene.  At this point I have thought of every conceivable scenario on race day and hopefully have prepared myself properly.  I have visualized the transitions in my mind, calculated my nutrition plan, and thought of all weather possibilities.  I packed back-up everything just in case something unforeseen were to happen.  I have taken too many last-minute trips to various stores to count.  But now, as it stands, there are two packed bags and a wetsuit on my bed, waiting to start our journey north.

After an early morning bike and run tomorrow, Dave and I will start off in the Subaru for the 17 hour drive from Denver to Coeur D'Alene.  We did a similar drive to the half-Ironman in Lawrence, Kansas last summer. There is something special about driving to an out-of-town race for me.  You are able to enjoy the countryside and each other's company more completely.  You embark full of anxiety and excitement and leave full of stories and satisfaction.  With a few books on tape, podcasts, and lots of music, the time should pass quickly.

Friday and Saturday will be spent in Coeur D'Alene doing all we can to prepare for the race.  We will pick up our race materials from the athlete check-in and begin to assemble our transition and special needs bags.  Driving the course, swimming in the chilly water, and attending course talks will also be on our agenda.  Both sets of our parents will be meeting us up there, so we will have the opportunity to have a nice meal together on Saturday night.

I'm sure those few days in Coeur D'Alene before the race will be intimidating and nerve-wracking.  When you check-in on Friday at an Ironman, they give you a wrist band that you need to wear the entire weekend to have access to parts of the course and the transition areas.  The weekend of the race, you see these wrist bands on almost everyone.  When this happened during my first (and only) half Ironman, I started to feel like I didn't belong there, like I was an impostor.  I felt like the other people with the wrist bands were real athletes and I was just a tourist.  I think we all feel this way the first time we do anything, but we need to move forward despite this feeling.  Through a confidence in ourselves and a faith in our training, we stand on that starting line as equals to everyone else, excited to begin the fun and challenging day ahead.

I hope to blog one more time before Sunday.  If not, I want to thank you for all of your support.  In the past few weeks, I have received numerous cards, emails, comments, and Facebook messages wishing us well.  All of you will be with me throughout the race, helping me put one stroke/pedal/foot in front of the other.  Your immense encouragement has made such a difference in my life.  Also, a BIG thank you to Karen and her family for housesitting for us.  They will be visiting from Arizona, staying at our house while we are away this weekend and also for a week after our return.  I can't wait to spend time with you, Greg, and beautiful Eli when we get back!

Athlete Tracker

You will have the ability to follow us online the day of the race.  I'm sorry that the directions I'm about to give you are very vague, but I don't really know too much about it.  If you are reading this and have followed an Ironman athlete on race day before, please post any details that you know of in the comments area of this post.

On Sunday June 26th, go to either ironman.com or ironmanlive.com (I'm not sure which one will work best).  There should be an athlete tracker link for the Coeur D'Alene Ironman.  You can start tracking us as early as 7:00 am (Pacific Time) and the race closes at midnight.  You will be able to look us up by last name (Nickoloff), but if not, my bib number is 244 and 1177 is Dave's number.

To donate to the Burn Center, do online to www.uch.edu.donate.  In the designation field, choose "Other" and type "Burn Fund (Team Emilie)."

Or you could mail your check to "UCHF- Burn Fund (Team Emilie) to UCHF 12401 East 17th Ave. Mail Stop F485 Aurora, CO 80045.

Monday, June 20, 2011

The Channel 7 News Story

I hope to be smiling this
big during the Ironman!
I am very excited to say that Sunday night's Channel 7 (ABC) nightly news included a story about my Ironman journey after SJS.  Below is a copy of the text and a link to the Channel 7 site where you can see the entire video.  At first I was nervous to do the interview, but now I am really glad that I did.  So many amazing people have reached out to me since Sunday (other survivors, family members of survivors, triathletes, etc).  You will all be in my thoughts during the race... IN 6 DAYS!

Link to the Story

Woman Overcomes Rare Disease To Compete In Ironman

Emilie Nickoloff Hopes To Raise Awareness About Stevens-Johnson Syndrome

POSTED: 4:35 pm MDT June 16, 2011
UPDATED: 10:15 am MDT June 20, 2011
Running on the Cherry Creek Trail, Emilie Nickoloff and her husband, David, are training for the race of their lives, an Ironman triathlon.

The Ironman is a "2.4 mile swim, 112 mile bike ride, and then a marathon, 26.2 miles," Nickoloff said.
She's in the best physical condition of her life. It's a stark contrast to four years ago when Nickoloff was admitted to the University of Colorado Hospital burn unit with a rare and potentially lethal disease.

"I had a fever of 104 and finally, we decided it was time to go to the hospital," Nickoloff said. "We noticed there was a rash forming on my arms. It started to spread all over my torso."
She was diagnosed with Stevens-Johnson syndrome.

"It's an autoimmune reaction," said Dr. Gordon Lindberg, medical director of the University of Colorado Hospital burn unit. "You take a medication, and for reasons that we don't understand completely, the body forms an allergic reaction to the skin, and the skin sloughs off."

The reaction also affects the mucous membranes, especially in the mouth, nose and eyes. In severe cases, patients can lose their vision. Nickoloff's vision was saved through cutting-edge amniotic membrane transplants.

"I woke up from a coma blind, and it took about a month to get my sight back. So people were telling me that I had burns all over my body, but I didn't know what that meant," Nickoloff said.

Lindberg said Stevens-Johnson syndrome patients are put into a medically induced coma so they don't feel the extreme pain of bandage changes and wound care. The UCH burn unit treats SJS patients from a five-state region. Still, it only treats between 15 and 20 cases each year. The rare nature of the disease left Nickoloff feeling isolated.

"I was trying to reach out to people, but there really wasn't anyone to reach out to," she said.
Now, having made a full recovery, Nickoloff is volunteering to share her experience with other SJS patients in treatment.

"I'll be talking with them and explaining my experiences and what it was like to come home and start the long recovery process," Nickoloff said.

She is also supporting SJS patients by raising money and awareness for the disease by competing in the Ironman triathlon; all the while, she is choosing not to dwell on the possibility of another reaction. In her case, doctors are unable to identify the cause of her reaction.

"A medication is out there that could kill me, potentially, and I don't know what it is," Nickoloff said. "But instead of being inhibited by that fact, I can still go out and accomplish great things everyday, and I hope that other people with Stevens-Johnson syndrome can take kind of a fearless approach to moving forward after the disease."

To learn more about Nickoloff's story or to track her Ironman training, read her blog.

To donate to the Burn Center, go online to www.uch.edu.donate.  In the designation field, choose "Other" and type "Burn Fund (Team Emilie)."

Or you could mail your check to "UCHF- Burn Fund (Team Emilie) to UCHF 12401 East 17th Ave. Mail Stop F485 Aurora, CO 80045.

Monday, June 13, 2011

Three Goals Down... One to Go!

I had four goals when I started this process close to seven months ago:

1.  Raise money for the Burn Center Fund and the Burn Service Crisis Intervention Fund

     Currently, the University of Colorado Foundation has received 31 gifts totaling well over $1,000 in the name of "Team Emilie."  The generosity of loved-ones and strangers alike has amazed me.  Thank you so much for helping us to support burn victims and educate the community about burn safety through your contributions.  There is still time for donations to help us raise even more.
Dave at Grant Ranch Lake
for an open water swim.
     Next weekend, Dave and I will be attending a University of Colorado Hospital Burn Center golf tournament fundraiser where we will be acknowledged for your contributions.  Meeting others also dedicated to giving back to the hospital is something I am greatly looking forward to.  I promise to post pictures after this exciting event.

2.  Reach out and inspire other Stevens Johnson Syndrome Survivors

     Through my blog, I have met two SJS survivors directly and interacted with many others in online groups I have joined over the past few months.  Kendra is one of the amazing SJS survivors I have met along my Ironman journey.  She is a runner from Wisconsin who brings together other survivors to participate in races with Team SJS.  The highlight for their team is running the Fox Cities Half-Marathon every year.  One of these years I hope to join them.  Check out her touching blog: One Foot in Front of the Other

3.  Spread awareness of Stevens Johnson Syndrome

     You would be amazed at how many hits my blog gets daily.  I average about 20-40 hits a day with over 1,800 all time pageviews.  Undoubtedly, many of these pageviews are the same few devoted people time and time again (Mom, Jan, Karen).  To my regulars, I appreciate your dedication and enthusiasm.  Yet other pageviews are people that did not know about SJS and are just learning about its devastating effects.  Thank you for your curiosity, compassion, and willingness to learn.
The finish line at the Elephant Rock
100 Mile Century Ride.
     I have also helped to spread awareness outside of this blog.  Dave and I were interviewed for a human-interest news story by Channel 7 ABC ( I will upload it to the blog when it airs).  I also posed in a photo shoot for a University of Colorado Hospital print ad to be run in the 5280 magazine for their August 'best doctors' issue (I have a tiny headshot in the ad).  My friend, Angie, also did a spotlight of my story and SJS on her blog, Ripple Affect: Awareness Leads to Action.  I never thought my little story would get this much exposure.    

4.  Complete an Ironman

     Oh yeah, then there is the Ironman.  Wow, only 13 more days!  The travel details are set, our workouts are tapering down, and all last-minute gear has been purchased.  I have dedicated most of my free time over the last seven months to training for this iconic race and now it is almost here.  My head is plagued with anxiety and doubt, but underneath all of that is a confidence and enthusiasm filling my entire body.  I feel energized and prepared; I know that I can do this.  I AM READY!  Coeur D'Alene, here we come!

To donate to the Burn Center, go online to www.uch.edu.donate.  In the designation field, choose "Other" and type "Burn Fund (Team Emilie)."

Or you could mail your check to "UCHF- Burn Fund (Team Emilie) to UCHF 12401 East 17th Ave. Mail Stop F485 Aurora, CO 80045.

Wednesday, June 1, 2011


I am a very anxious person, always finding things to worry about.  My imagination plays out the 'what ifs' in my head and I become preoccupied with the potential for disaster.  My feelings toward the upcoming Ironman, 25 days away, are no exception to this tendency for worry.  The race has begun to consume my thoughts.  While this does have the benefits of distracting me from other stress in my life (starting a new job next year, finishing my final three graduate classes this summer), it also makes me very nervous for the big day, June 26th.

My biggest Ironman fears pertain to the looming cut-off times for the race.  I am not an accomplished athlete- all races that I have done in the past have been at slow, comfortable paces with little concern for my finishing time.  While the 17 hour Ironman cut-off time seems generous at first, when looking at the cut-off times for each leg individually, my anxiety grows exponentially.

2.4 Mile Swim: Course closes 2 hours 20 minutes after the official start

A dorky picture I sent to my mom
when I first bought my swim gear in 2009
Due to chronic ear infections as a child, I never learned how to swim.  While I could doggie-paddle for survival purposes, any formal introduction to strokes and technique was abandoned to maintain my health and well-being.  When I decided to attempt triathlons two years ago, I knew I needed to learn how to freestyle swim.  I would watch You Tube swimming videos and lie on the floor of my living room, trying to figure out how to kick, stroke, float, and breath all at the same time.  I later moved into the pool at a local gym, only able to make in a few strokes before holding on to the wall.  Clearly, swimming is my biggest weakness and to this day, I have never taken a lesson.  I am self taught, moving through the water at a snail's pace.

Last weekend, Dave and I went to Grant Ranch Lake to practice open water swimming for the first time this season.  The chilly mid 50's water temperature did not detour us from finally taking our swim training out of the pool.  The Ironman will have a similar water temperature and we need to get used to that initial shock of the cold.  I swam 2.3 miles in 1 hour 45 minutes (although it was probably much longer because I can't swim in a straight line to save my life).  If it were the race, I would have 35 minutes to spare... this does not seem like a lot of time.  With the other swimmers bashing into me during the mass start, I could lose some of those precious minutes.  If I stay too long on the beach waiting for things to clear out, I could lose even more.

112 Mile Bike: Course closes 10 hours 30 minutes after the official start (8 hours 10 minutes for the bike alone)

Today I completed my ride at 16.2 mph.  If I complete the bike portion with an average of 16 mph, the bike will only take me 7 hours and I will be finished in plenty of time.  Even if I average 14 mph, I will successfully make the cut-off time.  While this seems very manageable, this bike also has the most unforeseen variables: an unrelenting headwind, multiple flat tires, a broken chain, a fall.  Ironman Coeur d'Alene is also a very hilly course with two large climbs.  The hills plus any of the other variables could greatly reduce my average mph making a 14 mph ride much tougher than usual.  I hope that my  Elephant Rock Century Ride this weekend (with over 6,000 total vertical feet of gain) will be good practice for what is to come.  If I can finish that ride with an average pace of over 14 mph, my confidence will be restored.

Dave, Karen, and I at the finish of
the Las Vegas Marathon
26.2 Mile Run: Course closes 17 hours after the official start   (6 hours 30 minutes for the run alone)

I think to myself, "Just make it to the run... Just make it to the run."  Running is something I love; I have completed multiple marathons, half-marathons, 10Ks, and 5Ks before.  I know that I can easily do a marathon in under the required 15 minute miles.  I've hit the metaphorical "wall" before and run through it with determination and perseverance.

But then I see videos like this one and think that I might be oversimplifying this marathon just a bit:

Watching two professional athletes fall apart like that at the finish makes me wonder what might happen to me.  While I won't be going nearly as fast as those two amazing women (this is a very extreme case- thank goodness), my worrisome imagination does get the better of me.  I certainly hope I will be able to keep it together until the end.

I predict for the next 26 days these apprehensive thoughts will be floating around in my mind, popping in and out of prominence.  I hope that I have what it takes to complete each leg of this race successfully and in the required cut-off time.  I do not want to disappoint myself or the many people that have supported me along the way.

These unavoidable doubts that have been circling around my anxious brain.  We all have doubts in life when facing an enormous challenge or attempting something new.  Taking risks, allowing ourselves to become vulnerable, feeling nervous and unsure- that is what life is all about.  These butterflies in my stomach and frogs in my throat (yes... already) remind me that I'm stretching my boundaries in new, exciting ways.  If I reach those cut-off times or not, I know that I have become a new person along the way.

To donate to the Burn Center, go online to www.uch.edu/donate.  In the designation field, choose "Other" and type "Burn Fund (Team Emilie)."

Or you could mail your check to "UCHF- Burn Fund (Team Emilie)" to UCHF 12401 East 17th Ave. Mail Stop F485 Aurora, CO 80045.